Vivian Paintsil
Department of Child HealthHealth SciencesSocial SciencesLife Sciences

Vivian Paintsil

72 Publications17 Research Themes51 Open Access
Research Overview & Focus

The researcher has conducted extensive research focusing on two primary themes: renal and related cancers, and hemoglobinopathies. In renal and related cancers, studies highlight advancements in Wilms tumour treatment, the surgical aspects of nephrectomy, improved survival rates in African populations, and adaptive treatment guidelines for local circumstances. These findings underscore the need for tailored care strategies to optimize patient outcomes. In the context of hemoglobinopathies, research delves into the management of sickle cell disease, utilizing standardized methodologies such as multi-country surveys and qualitative insights. Additionally, studies examine the role of heme oxygenase-1 in pediatric patients with sickle cell disease, emphasizing its significance in assessing kidney function. These discoveries highlight the importance of understanding systemic health issues to enhance patient care outcomes and improve quality of life for affected individuals.

Faculty Biography

Vivian is a Senior Lecturer at the Department of Child Health, Kwame Nkrumah University of Science and Technology (KNUST), Kumasi, Ghana and a Senior Specialist Paediatrician working at the Komfo Anokye Teaching Hospital (KATH) in Kumasi. She holds a Bachelor of Medicine and Surgery (MB ChB) from the School of Medical Sciences, KNUST. She is a Fellow of the West Africa College of Physician(WACP paeds) and the Ghana College of Physicians and Surgeons. she also holds a certificate in paediatric oncology from South Africa- African Paediatric Fellowship Programme.Her work involves teaching and clinical care of paediatric cancer patients and others with haematological problems especially sickle cell disease at KATH which is a tertiary referral centre in Ghana. KATH is one of the two treatment centres in the country for childhood cancers. Komfo Anokye Teaching Hospital has a large cohort of sickle cell disease patients with a newborn screening programme in place and patients in the clinic are mostly from this newborn cohort.she is involved a lot of advocacy through talks on radio, television and churches to promote the early detection of childhood cancers and also on sickle cell diseaseOver the last Fifteen years, she has gained extensive experience in undergraduate and postgraduate teaching and in research in Ghana. She is currently heading the paediatric haem/oncology unit.She is involved in various researches, initially with the SCD newborn screening project and the Organ Damage in Sickle Cell Disease Study (ORDISS) project. She was the co-PI for Sickle Pan African Research Consortium (SPARCO) I for the Ghana site and involved in the Sickle Cell Disease Genomics of Africa (SickleGen Africa) project. She is also involved in various ongoing clinical trials at KATH. She is the PI for the SIOP Wilms Tumour Africa Project at the Kumasi Site and part of the CANCaRe Africa consortium for paediatric oncology research.

Key Research Themes (17)
Health Sciences

Acute Lymphoblastic Leukemia research

Health Sciences

Childhood Cancer Survivors' Quality of Life

Health Sciences

COVID-19 Impact on Reproduction

Health Sciences

Global Cancer Incidence and Screening

Health Sciences

Global Health and Surgery

Health Sciences

Global Maternal and Child Health

Health Sciences

Hemoglobinopathies and Related Disorders

Health Sciences

Iron Metabolism and Disorders

Health Sciences

Lymphoma Diagnosis and Treatment

Health Sciences

Neutropenia and Cancer Infections

Health Sciences

Ocular Oncology and Treatments

Health Sciences

Ophthalmology and Visual Impairment Studies

Social Sciences

Pharmaceutical Economics and Policy

Health Sciences

Pregnancy and preeclampsia studies

Social Sciences

Religion, Spirituality, and Psychology

Life Sciences

Renal and related cancers

Health Sciences

SARS-CoV-2 and COVID-19 Research

Publications (72)

Immunisation status and clinical outcomes in children admitted to a Paediatric emergency unit in Ghana: a prospective cohort study

Open Access

Healthcare providers’ knowledge on sickle cell disease and its management: A pre- and post-training test evaluation outcome

Open Access
2025Hemoglobinopathies and Related DisordersDOI: 10.1371/journal.pone.0332069

Significant Impact of Treatment Abandonment on Survival of Children With “Common and Curable” GICC Index Cancers in Sub‐Saharan Africa—A Multicenter Prospective CANCaRe Africa Study

2025Acute Lymphoblastic Leukemia researchDOI: 10.1002/pbc.31997

Elevated serum heme oxygenase‐1 in pediatric sickle cell disease: Insights from the SickleGenAfrica Network

Open Access
2025Hemoglobinopathies and Related DisordersDOI: 10.1002/hem3.70209

Neutrophil gelatinase-associated lipocalin and fibrinogen-to-albumin ratio are indicators of kidney disease in sickle cell disease patients with microalbuminuria: a multicentre case-control study in Ghana

Open Access
2025Hemoglobinopathies and Related DisordersDOI: 10.1186/s12882-025-04427-2

Clinical manifestations of sickle cell disease in Africa and its association with foetal haemoglobin parameters

Open Access
2025Hemoglobinopathies and Related DisordersDOI: 10.1038/s43856-025-00954-z

SPIROMETRY ASSESSMENTS IN CHILDREN WITH SICKLE CELL DISEASE IN GHANA AND FACTORS THAT CONTRIBUTE TO ABNORMAL LUNG FUNCTION- A CASE CONTROL STUDY.

Open Access
2025Hemoglobinopathies and Related DisordersDOI: 10.22541/au.174828128.86074416/v1

Sickle Cell Disease in Africa: SickleInAfrica Registry in Ghana, Nigeria and Tanzania

Open Access
2025Hemoglobinopathies and Related DisordersDOI: 10.1002/jha2.70044

Assessing Major Organ Dysfunction in Children With Sickle Cell Disease: Protocol for a Cross‐Sectional Study

Open Access
2025Hemoglobinopathies and Related DisordersDOI: 10.1002/hsr2.70794

Spatial and Temporal Distribution of Pediatric Cancers in Southern Ghana: A Retrospective Observational Study

Open Access
2025Global Cancer Incidence and ScreeningDOI: 10.1002/hsr2.70797

Strengthening global partnerships for sustainable sickle cell disease care: insights from SickleInAfrica at the 77th United Nations General Assembly and the US-Africa Leaders’ Summit

Open Access
2025Hemoglobinopathies and Related DisordersDOI: 10.1136/bmjgh-2024-017154

Transition Readiness of Pediatric Sickle Cell Patients to Adult Clinic in a Teaching Hospital, Ghana

Open Access
2025Hemoglobinopathies and Related DisordersDOI: 10.1155/ah/2843974

A cross-sectional study of the clinical manifestations of Sickles Cell Disease in Ghana, Nigeria and Tanzania and its association with foetal haemoglobin parameters

Open Access
2024Hemoglobinopathies and Related DisordersDOI: 10.21203/rs.3.rs-5328156/v1

Neutrophil gelatinase-associated lipocalin and Fibrinogen-to-albumin ratio are indicators of nephropathy in adult steady state sickle cell disease patients: A multicenter case-control study in Ghana

Open Access
2024Hemoglobinopathies and Related DisordersDOI: 10.1101/2024.10.14.24315440

Reflections on 20 years of the Wilms Africa project: Lessons learned and the way forward

Open Access
2024Renal and related cancersDOI: 10.1002/pbc.31386

A contemporary evaluation of the frequency & factors associated with overt stroke across the lifespan: A Ghanaian sickle cell disease registry analysis

2024Hemoglobinopathies and Related DisordersDOI: 10.1016/j.jns.2024.123263

Effectiveness of a Wilms tumour treatment guideline adapted to local circumstances in sub‐Saharan Africa: A report from Wilms Africa Phase II—CANCaRe Africa

Open Access
2024Renal and related cancersDOI: 10.1002/pbc.31300

Adherence to routinely prescribed medications among paediatric sickle cell disease patients in Kumasi, Ghana

Open Access
2024Hemoglobinopathies and Related DisordersDOI: 10.4314/gmj.v58i2.2

Surgical aspects and outcomes after nephrectomy for Wilms tumour in sub‐Saharan Africa: A report from Wilms Africa Phase II—CANCaRe Africa

2024Renal and related cancersDOI: 10.1002/pbc.31134

Prevention of treatment abandonment remains an important challenge to increase survival of Wilms tumor in sub‐Saharan Africa: A report from Wilms Africa—CANCaRe Africa

2024Renal and related cancersDOI: 10.1002/pbc.31069

Determinants of retinoblastoma treatment delay in a Sub-Saharan African country

Open Access
2024Ocular Oncology and TreatmentsDOI: 10.1016/j.jfop.2024.100094

Transcranial Doppler Screening of Children with Sickle Cell Disease for a Large, Multinational Interventional Study: Experience from the Phase 3 HOPE-Kids 2 Trial Investigating the Effect of Voxelotor Treatment on Transcranial Doppler Flow Velocity

2023Hemoglobinopathies and Related DisordersDOI: 10.1182/blood-2023-188677

Enhanced Expression of Heme Oxygenase-1 (HO-1) Among Children with Sickle Cell Disease: Results of the Sickle Cell Disease Genomics of Africa (SickleGenAfrica) Study

2023Hemoglobinopathies and Related DisordersDOI: 10.1182/blood-2023-189608

Hospitalizations among children with sickle cell disease enrolled in the Kumasi Sickle Cell Pan African Consortium (SPARCo) database: A cross sectional study

Open Access
2023Hemoglobinopathies and Related DisordersDOI: 10.1002/hsr2.1534

Editorial: Building capacity for sickle cell disease research and healthcare

Open Access
2023Hemoglobinopathies and Related DisordersDOI: 10.3389/fgene.2023.1226589

Weight estimation in two groups of Ghanaian children with chronic diseases using Broselow, Mercy, PAWPER XL and PAWPER XL-MAC tapes

Open Access
2023Hemoglobinopathies and Related DisordersDOI: 10.1016/j.afjem.2023.04.003

Biomarkers of oxidative stress and its nexus with haemoglobin variants and adverse foeto-maternal outcome among women with preeclampsia in a Ghanaian population: A multi-centre prospective study

Open Access
2023Pregnancy and preeclampsia studiesDOI: 10.1371/journal.pone.0283638

Hemolysis scavenger proteins and renal function marker in children with sickle cell disease at steady state: A cross‐sectional study

Open Access
2023Hemoglobinopathies and Related DisordersDOI: 10.1002/hsr2.1177

Development of multi-level standards of care recommendations for sickle cell disease: Experience from SickleInAfrica

Open Access
2023Hemoglobinopathies and Related DisordersDOI: 10.3389/fgene.2022.1052179

Evaluating the baseline survival outcomes of the “six Global Initiative for Childhood Cancer index cancers” in Africa

2022Acute Lymphoblastic Leukemia researchDOI: 10.1080/08880018.2022.2140860

Iron stores in steady‐state sickle cell disease children accessing care at a sickle cell disease clinic in Kumasi, Ghana: A cross‐sectional study

Open Access
2022Iron Metabolism and DisordersDOI: 10.1002/hsr2.934

Penicillin V prophylaxis uptake among children living with sickle cell disease in a specialist sickle cell clinic in Ghana: A cross‐sectional study

Open Access
2022Hemoglobinopathies and Related DisordersDOI: 10.1002/hsr2.953

Answers to common questions about COVID‐19 vaccines in children with cancer

Open Access
2022SARS-CoV-2 and COVID-19 ResearchDOI: 10.1002/pbc.29985

P-007: HYDROXYUREA FOR THE MANAGEMENT OF SICKLE CELL DISEASE IN LOW- AND MIDDLE-INCOME COUNTRIES: A SYSTEMATIC REVIEW (2000–2022)

Open Access
2022Hemoglobinopathies and Related DisordersDOI: 10.1097/01.hs9.0000872932.23177.e8

P1489: MANAGEMENT OF SICKLE CELL DISEASE WITH HYDROXYUREA: A SYSTEMATIC REVIEW FROM LOW- AND MIDDLE-INCOME COUNTRIES

Open Access
2022Hemoglobinopathies and Related DisordersDOI: 10.1097/01.hs9.0000848812.59349.97

Establishing a Sickle Cell Disease Registry in Africa: Experience From the Sickle Pan-African Research Consortium, Kumasi-Ghana

Open Access
2022Hemoglobinopathies and Related DisordersDOI: 10.3389/fgene.2022.802355

Exploring The Reasons For Late Reporting Of Childhood Cancer Cases For Treatment At Komfo Anokye Teaching Hospital

Open Access
2022Childhood Cancer Survivors' Quality of LifeDOI: 10.31191/afrijcmr.v5i1.98

Profile Of Childhood Cancer Cases Seen At The Paediatric Oncology Unit Of A Tertiary Hospital In Ghana - A 10 Year Review

Open Access
2022Childhood Cancer Survivors' Quality of LifeDOI: 10.31191/afrijcmr.v5i1.99

Improvement of survival in Wilms Tumor patients at the paediatric oncology unit, KATH

Open Access
2022Renal and related cancersDOI: 10.31191/afrijcmr.v5i1.103

Hospitalizations among children with Sickle Cell Disease enrolled into the Kumasi SPARCo database

Open Access
2022Hemoglobinopathies and Related DisordersDOI: 10.31191/afrijcmr.v5i1.90

Wilms tumour

Open Access
2021Renal and related cancersDOI: 10.1038/s41572-021-00308-8

Treatment abandonment: A report from the collaborative African network for childhood cancer care and research—CANCaRe Africa

2021Childhood Cancer Survivors' Quality of LifeDOI: 10.1002/pbc.29367

Fever and neutropenia outcomes and areas for intervention: A report from SUCCOUR ‐ Supportive Care for Children with Cancer in Africa

2021Neutropenia and Cancer InfectionsDOI: 10.1002/pbc.29224

Early death and treatment‐related mortality: A report from SUCCOUR ‐ Supportive Care for Children with Cancer in Africa

2021Childhood Cancer Survivors' Quality of LifeDOI: 10.1002/pbc.29230

Sickle Cell Disease Genomics of Africa (SickleGenAfrica) Network: ethical framework and initial qualitative findings from community engagement in Ghana, Nigeria and Tanzania

Open Access
2021Hemoglobinopathies and Related DisordersDOI: 10.1136/bmjopen-2020-048208

SARS CoV-2 Infection in a Neonate in Ghana: A Case Report

Open Access
2021COVID-19 Impact on ReproductionDOI: 10.52547/iem.7.3.9

Utilization of Pneumococcal Vaccine and Penicillin Prophylaxis in Sickle Cell Disease in Three African Countries: Assessment among Healthcare Providers in SickleInAfrica

Open Access
2021Hemoglobinopathies and Related DisordersDOI: 10.1080/03630269.2021.1954943

Stigma Associated With Sickle Cell Disease in Kumasi, Ghana

2021Religion, Spirituality, and PsychologyDOI: 10.1177/10436596211008216

Caregiver Perception of Sickle Cell Disease Stigma in Ghana: An Ecological Approach

Open Access
2020Hemoglobinopathies and Related DisordersDOI: 10.1016/j.pedhc.2020.08.002

Working Together to Build a Better Future for Children With Cancer in Africa

Open Access
2020Childhood Cancer Survivors' Quality of LifeDOI: 10.1200/go.20.00170

Erratum to “Are essential medicines available, reliable and affordable in low-middle income countries?” [J. Cancer Policy 19 (March) (2019) 100180]

2020Pharmaceutical Economics and PolicyDOI: 10.1016/j.jcpo.2020.100239

Improvement of overall survival in the Collaborative Wilms Tumour Africa Project

2020Renal and related cancersDOI: 10.1002/pbc.28383

Hemopexin deficiency promotes acute kidney injury in sickle cell disease

Open Access
2020Hemoglobinopathies and Related DisordersDOI: 10.1182/blood.2019002653

SickleInAfrica

Open Access
2020Hemoglobinopathies and Related DisordersDOI: 10.1016/s2352-3026(20)30006-5

Reliable cell and tissue morphology-based diagnosis of endemic Burkitt lymphoma in resource-constrained settings in Ghana

Open Access
2020Lymphoma Diagnosis and TreatmentDOI: 10.21203/rs.2.10910/v3

Reliable cell and tissue morphology-based diagnosis of endemic Burkitt lymphoma in resource-constrained settings in Ghana

Open Access
2019Lymphoma Diagnosis and TreatmentDOI: 10.1186/s12885-019-6488-1

Reliable cell and tissue morphology-based diagnosis of endemic Burkitt lymphoma in resource-constrained settings in Ghana

Open Access
2019Lymphoma Diagnosis and TreatmentDOI: 10.21203/rs.2.10910/v2

Establishing a Multi-Country Sickle Cell Disease Registry in Africa: Ethical Considerations

Open Access
2019Hemoglobinopathies and Related DisordersDOI: 10.3389/fgene.2019.00943

Reliable cell and tissue morphology-based diagnosis of endemic Burkitt lymphoma in resource-constrained settings in Ghana

Open Access
2019Lymphoma Diagnosis and TreatmentDOI: 10.21203/rs.2.10910/v1

The Sickle Cell Disease Ontology: enabling universal sickle cell-based knowledge representation

Open Access
2019Hemoglobinopathies and Related DisordersDOI: 10.1093/database/baz118

Are essential medicines available, reliable and affordable in low-middle income countries?

2018Pharmaceutical Economics and PolicyDOI: 10.1016/j.jcpo.2018.12.001

Data collection in the Collaborative Wilms Tumour Africa Project

Open Access
2018Renal and related cancersDOI: 10.1016/j.phoj.2018.09.001

Development of paediatric oncology shared-care networks in low-middle income countries

2018Global Maternal and Child HealthDOI: 10.1016/j.jcpo.2018.03.003

G278(P) Development of successful and sustainable paediatric oncology shared-care networks in low-middle income countries

Open Access
2018Global Health and SurgeryDOI: 10.1136/archdischild-2018-rcpch.270

Improved outcome at end of treatment in the collaborative Wilms tumour Africa project

2018Renal and related cancersDOI: 10.1002/pbc.26945

The Eye Care Needs of Persons with Visual Impairment in a District Hospital in Ghana

2017Ophthalmology and Visual Impairment Studies

Organ damage in sickle cell disease study (ORDISS): protocol for a longitudinal cohort study based in Ghana

Open Access
2017Hemoglobinopathies and Related DisordersDOI: 10.1136/bmjopen-2017-016727

Assessment of Transition Readiness in Adolescents with Sickle Cell Disease and their Caretakers, A single institution experience

Open Access
2017Hemoglobinopathies and Related DisordersDOI: 10.17554/j.issn.2409-3548.2017.03.47

The SIOP Africa/PODC Collaborative Wilms Tumour Project Making Progress

2016Renal and related cancers

The SIOP Africa/PODC Collaborative Wilms Tumour Project: Principles and Methods with A Focus on Data Collection and Follow Up

2016Renal and related cancers

Hodgkins lymphoma: Clinicopathologic features in paediatric patients presenting at the Komfo Anokye Teaching Hospital-Kumasi.

2015Lymphoma Diagnosis and TreatmentDOI: 10.1200/jco.2015.33.15_suppl.e21007

The Collaborative Wilms Tumour Africa Project; Baseline evaluation of Wilms tumour treatment and outcome in eight institutes in sub-Saharan Africa

2014Renal and related cancersDOI: 10.1016/j.ejca.2014.10.030
Academic Metrics
DepartmentDepartment of Child Health
Total Publications72
Research Themes17
Open Access Papers51

Department of Child Health

Kwame Nkrumah University of Science and Technology

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